*Added during the 81st Legislative Session* Hospitals, medical laboratories, and other facilities that provide screening, diagnostic or therapeutic services to patients with respect to lupus and its variants shall report information prescribed by the State Board of Health to the Nevada State Chief Medical Officer.
Hospitals, medical laboratories and other facilities that provide screening, diagnostic or therapeutic services to patients with respect to lupus and its variants
Any provider of health care who diagnoses or provides treatment for lupus and its variants, except for cases directly referred to the provider or cases that have been previously admitted to a hospital, medical laboratory or other facility
The State Board of Health shall by regulation:
1. Prescribe the form and manner in which information on cases of lupus and its variants must be reported;
2. Prescribe the information that must be included in each report, which must include, without limitation:
(a) The name, address, age and ethnicity of the patient;
(b) The variant of lupus with which the person has been diagnosed;
(c) The method of treatment, including, without limitation, any opioid prescribed for the patient and whether the patient has adequate access to that opioid;
(d) Any other diseases from which the patient suffers;
(e) Information concerning the usage of and access to health care services by the patient; and
(f) If a patient diagnosed with lupus and its variants dies, his or her age at death; and
3. Establish a protocol for allowing appropriate access to and preserving the confidentiality of the records of patients needed for research into lupus and its variants.
The Chief Administrative Officer of each health care facility in Nevada shall make available to the Chief Medical Officer of his/her representative the records of the health care facility for each case of lupus and its variants.
Any person who violates this section is subject to an administrative penalty established by regulation by the State Board of Health.
A person or governmental entity that provides information to the Division in accordance with this act must not be held liable in a civil or criminal action for sharing confidential information unless the person or organization has done so in bad faith or with malicious purpose.
The Division shall publish reports based upon the information obtained and make other appropriate uses of the information to report and assess trends in the usage of and access to health care services by patients with lupus and its variants in a particular area or population, advance research and education concerning lupus and its variants and improve the treatment of lupus and its variants and associated disorders. The reports must include, without limitation:
(a) Information concerning the locations in which patients diagnosed with lupus and its variants reside, the demographics of such patients and the utilization of health care services by such patients;
(b) The information described in paragraph (a), specific to patients diagnosed with lupus and its variants who are over 60 years of age; and
(c) The transition of patients diagnosed with lupus and its variants from pediatric to adult care upon reaching 18 years of age.
Originating Legislation: SB175 (2021)
Awaiting regulations by the Nevada State Board of Health
